Navigating rare disease, from patient to advocate

I was diagnosed with giant cell tumour of bone in 2021. Since then, I've navigated surgery, recurrence, and ongoing treatment, and turned that experience into a mission to help others facing complex medical journeys.

Mark Latham

How I can help

Navigating the medical system alone is overwhelming, especially with a rare or complex condition. I offer practical support based on real experience.

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Navigator Consult

A one-on-one conversation to help you understand your options, know what questions to ask, and feel prepared for your next appointment.

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Second Opinion Support

Help identifying the right specialists, preparing your records, and making sure you get the second opinion you need.

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Care Coordination

Ongoing concierge-style support to keep track of appointments, specialists, and the full picture, so nothing falls through the cracks.

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Research & advocacy

Beyond patient navigation, I work actively in GCTB research, partnering with institutions to advance understanding of rare bone tumours and push for better treatment options.

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Working with

Rare Voices Australia Rare Diseases NSW Precision Care Initiative Omico Victorian Bone and Joint Specialists Medical Oncology Victoria GCT Support

Navigating something complex?

Book a free 45-minute discovery call. No pressure, no commitment. Just a conversation about how I might be able to help.

Book a Free Discovery Call